Why is an autopsy important?
An autopsy is helpful to the family because it will confirm the diagnosis of Alzheimer's disease or other dementias. It may also eliminate unnecessary concern or wondering each time family medical history is discussed. Many families find that getting such diagnostic confirmation provides closure or resolution to the caregiving experience.
An autopsy will also contribute to scientific research. This information is vital to researchers working to better understand the effects of neurodegenerative disease on the brain. Without this research the development of better treatment would be greatly limited.
What special procedures must be followed at the time of death?
There are no special procedures but it is very important to have the autopsy performed before funeral preparations, within 12 hours of death, to be of maximum research value. There is however, still immense value in having an autopsy performed up to 24 hours after death. It is recommended that you contact the Alzheimer’s Disease Research Center (ADRC) as soon as you make the decision to participate in the autopsy program.
What is the cost of the autopsy?
For participants of the ADRC there is no charge for the autopsy procedure. For non–ADRC individuals there is a fee.
Who can authorize an autopsy?
An individual or family member can indicate their intent for an autopsy by giving provisional authorization prior to death.
After death however, the person's legal next-of-kin must authorize the autopsy before it can actually be performed. This is done via a 3-way phone conversation with ADRC personnel shortly after the patient’s death.
Which organs are examined at an ADRC research autopsy?
Under normal circumstances, only the brain is examined for ADRC participants.
Will I receive the autopsy results?
Yes, after completion of the autopsy procedure a report will be sent within several months.
Will the autopsy disfigure the body?
No, an autopsy is performed very carefully so that it is not noticeable in any way and does not prevent an open casket viewing or other desired funeral practice.
Should I talk to my funeral director in advance?
Yes, we recommend as many prearrangements as possible be done in advance with your funeral director. This can help avoid increased stress at a very difficult time. If you do not have a funeral director, we would encourage you to consider selecting one in advance.
How does the deceased get to and from the autopsy site?
Transportation is generally provided by the funeral home. If this is not possible the ADRC can arrange transportation through a service. Costs will be covered by the ADRC for center participants.
Can an individual enroll in the autopsy program prior to death?
Yes, at any time prior to death, an individual can enroll in the ADRC autopsy program by indicating “intent” for autopsy and giving provisional authorization.
For additional information about the autopsy program please call the Alzheimer Disease Research Center 412-692-2700.